Project Summary
Background
Many neurodivergent people continue to report unmet needs, unappreciated strengths, and harmful consequences. There is a need to examine how a neurodiversity profiling tool can be used to help children and young people access early, personalised support. The Portsmouth-Cornwall profiling tool aims to assess the level of impact experienced in everyday life. The authors have shared their work so that it can be adopted and adapted for local use in other geographical regions. The ICB aim to roll out a Neurodiversity profiling tool to trigger earlier support for children as part of the Cheshire and Merseyside Neurodevelopmental pathway.
Research Questions
- Does the profiling tool accurately describe the strengths and needs of children and young people with neurodevelopmental differences?
- Does it improve understanding of the child/young person?
- Does it improve support?
- What are the barriers and facilitators to the use of the profiling tool?
Contact Us
Feel free to get in touch with us at:
cwp.
Survey of young people, parents/carers, and education-based practitioners to understand whether there have been changes in support and everyday life and wellbeing since the profiles were created
Interviews with young people, parents/carers, and education-based practitioners to discuss experiences of using the profiling tool and views on what works well and what doesn’t
Three co-production workshops to inform the recommendations for refining the profiling tool and implementation manual
Bringing together findings from all work packages to provide recommendations for refinement of the profiling tool and the associated manual, ready to be implemented across Cheshire and Merseyside
Meet the team
Study team admin support: Henrietta De Gale
Research assistant: Ruksana Begum-Meades
Senior clinical studies officer: Lisa Douglas
Clinician researcher: Isobel Tollerfield
Mentoring: Lisa Thompson / Chris Wee
Expert by experience: Josef de la Moitie
